Retinoblastoma Patient Clinical Database and Tissue Repository (NCT04959097)
🩺 Plain-English Summary (8th-Grade Level)
Retinoblastoma (RB) is a primary eye cancer that forms in the back of the eye of infants and toddlers. Traditionally, RB is diagnosed without a biopsy; tumor can only be studied once an eye has been surgically removed. Given this limitation, we use aqueous humor (AH), the clear fluid in the front of the eye to detect specific markers, or information, that comes from the tumor itself.
Who can join: To join this study, participants generally need to meet the listed inclusion criteria (1 items) and avoid the listed exclusions (2 items).
Location: Phoenix Children's Hospital — Phoenix, Arizona
Age range: 0 Years to 18 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistCheck every box below. If you can check all of them, you may meet the study's basic screening requirements (final eligibility is confirmed by the site team).
Usually NOT eligible if any of the following apply:
- Exclusion Criteria:
- Patients referred for second opinions only and not treated at CHLA for any reason.
🔍 Extracted verbatim from the official NIH eligibility criteria. Always confirm with the study coordinator.
📍 All Participating Trial Locations (9 Sites)
- Phoenix Children's Hospital — Phoenix, Arizona
- Children's Hospital Los Angeles — Los Angeles, California
- Emory University Children's Healthcare of ATL — Atlanta, Georgia
- Ann & Robert H. Lurie Children's Hospital of Chicago — Chicago, Illinois
- Oregon Health & Science University: Casey Eye Institute — Portland, Oregon
- Wills Eye Institute — Philadelphia, Pennsylvania
- St. Jude Children's Research Hospital — Memphis, Tennessee
- Seattle Children's Hospital; University of Washington — Seattle, Washington
- The Hospital for Sick Children (Toronto SickKids) — Toronto, Ontario
📞 Contact the Study Coordinator
Phone: (323) 361-4510
Email: jberry@chla.usc.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Retinoblastoma
- Studying Health Outcomes After Treatment in Patients With Retinoblastoma — Chicago, Illinois
- Protocol for the Study and Treatment of Participants With Intraocular Retinoblastoma — Memphis, Tennessee
- Retinoblastoma Phase II Expanded Access Clinical Trial — New York, New York
- Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life — New York, New York
Explore by condition: All Retinoblastoma clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.